Meeting Other With Type 1 Diabetes Too!
So up until recently, I never thought blogging mattered that much. I didn’t think people actually read what I wrote, or thought about. Last night I went to a meeting with a bunch of diabetics, and it hit me! People actually do read quite a bit of articles online, do their research about others with diabetes and are interested to hear what I think about my life with diabetes. So my next thought… what do I need to do to get people involved? Continue to blog. So here I am. Blogging.
I met a girl in this diabetes group last night who said she was excited to see that I had signed up for her meet-up group. She said she had seen my name “Calla Rusch” before and thought it was very pretty and unique, but couldn’t remember where she had found me online. I do have a facebook, twitter, a blog, and my own website, but how did she know me? I never recall seeing her name before (even though I am really bad at it), I never remember reading her articles or seeing her photos. Ultimately, she claimed that she has seen my website a long time. At the moment, not much has been going on with my site. She had hit a dead end, and I disappeared out of her little online universe. But in” real life,” I reappeared and she finally got to meet the real person, me.
So at this meeting, I was able to meet and converse with many girls my own age, with similar interests and all of us sharing the life of a diabetic. We were all able to talk about how old we were when being diagnosed (I was 9) and how many years we’ve been dealing with it (it currently been 14 years). I was chatting with one of the ladies who is also currently on the OmniPod pump, like myself. She was complaining about the spots where she puts her pods, and being worried about other people seeing it. I told her how I have become accustomed to it, and how I really don’t care if people see it anymore! I’ve learned how to plan ahead, and put it in my bra, if need be. She told me she places it on her leg if she’s wearing a form fitting dress, which I’ve never done. I feel like we both learned a little bit from each other about how we both live differently, yet very similar with our OmniPod insulin pumps.
Altogether as a group we spoke about how little JDRF does to keep us young ladies (aged 24-32) interested in them as an organization. Obviously all of us are type 1 diabetics, and at one point in time, we were all diagnosed as Juvenile diabetics. JDRF, which stands for the Juvenile Diabetes Research Foundation, has recently decided to change their name. The numbers of diabetics, like me and the others in our group, have gotten older and their entire lives have changed. Yes I am a juvenile diabetic, but that’s just a part of my life and they way in which they label it, makes me feel as though I am a child. JDRF as a national organization needs to become more aware that children do grow up, do become adults and move on with their lives. It is unfair to label us “juvenile” for the rest of our lives. Everyone in the group agreed. JDRF is now re-branding itself to support those with Type 1 Diabetes, rather than just Juvenile Diabetes.
The support group helped all of us vent about the problems we individually face with diabetes, and helped us to come to an understanding that we are not in it alone. I too came to that understanding, and now will continue to pass my thoughts and feelings along to all the blog readers out there!