August 19th “Wordless Wednesday” – Share a picture or video on your blog!
Tomorrow marks one year of marriage for my husband and I. It seems like it was only yesterday, but at the same time, we have done a lot in our lives together in this past year that I will never forget.
He has been there through the best of times (like us finally closing on a house of our own) and through the worst of times (like the passing away of my beloved grandfather who walked me down the aisle). I cannot thank my husband enough for always being there for me, supporting me and of course, helping to manage my diabetes.
With some really tough work, I have managed to get my a1C down to a whopping 6.2%. This has come from checking my Dexcom CGM constantly and checking my blood sugars anywhere from 8 – 12 times per day. My endocrinologist was very pleased with my test results and exclaimed “Keep up the good work! This range is consistent with the recommended limit (4.2-6.3%) for a non-diabetic population.” I have never felt so happy and accomplished of for doing something I’ve worked for so long to achieve.
The post below was originally written over three months ago, so you will notice some differences in my a1C numbers. The differences are most certainly good ones. We are working together, as a married couple, to achieve the perfect blood sugar and an even better life together!
I recently wrote this post for Suite D — an online community created for diabetics using or wanting to learn more about the Omnipod Insulin Pump. Click here to see this public post on their website.
Getting married is a big deal to everyone. But getting married, balancing life as a married couple, and living with type 1 diabetes is even more difficult. We argue about things most newly married couples don’t even have to think about, let alone have to worry about.
I have been a type 1 diabetic since I was 9 years old. I claim to know how to control my blood sugar levels. My husband understands the frustrations I go through on a daily basis. Because he is fortunate enough to live without this disease, it is hard for him to completely comprehend what makes my blood sugars spike and drop so rapidly and so unpredictable.
My husband has always been very supportive in helping to manage my diabetes. When we first started dating, and before I got a CGM, I scared him half to death when I didn’t wake up one morning because of low blood sugar. He had to rush home from work, give me some juice and wait for my sugars to go back up. Ever since then, he has woken me up every morning before leaving for work to make sure I check my blood sugar level in front of him. We also mutually decided that it made sense to set an alarm at 3:00am to check my blood sugar. This way, we could both avoid further frustrations that type 1 diabetes has to offer.
Recently we got into an argument because of my OmniPod meter vibrating. I have an alert set to check my blood sugar for dinner at 6:30pm. By that point, I had already checked my blood sugar, bolused and we had already ate. My meter was tucked away in my purse, and I was in the other room completely oblivious to the vibrating noise. He kept hearing it. He was annoyed, and I told him to just turn it off. He refused.
He didn’t think its ‘right’ to go into a woman’s purse. I told him he had my permission to do so, and being that I am now his wife, he shouldn’t feel that way. Yet he still refused and continued to complain for me to turn it off. Annoyed and irritated, I dropped everything else I was working on and turned off the alert.
Since we are newlyweds, a lot of people surrounding us have asked when we are going to start a family. Neither of us is ready for the full time commitment of a baby right now, but we also know it is going to take a lot extra planning before we can even start trying. I have been trying to get my a1c number down significantly so I can get the green light from my endocrinologist and OBGYN. I have read up on what it takes to plan accordingly. With that being said, I have been testing my blood sugars more often and set the high & low limits on my CGM in tighter control. We have worked together to start eating better and more balanced food. We have worked together to get better blood sugar levels, and he has been on my butt even more about giving myself more insulin to avoid a high blood sugar.
In the last 3 months, my a1c has come down .6% (from a 7.4% to a 6.8%). We both know it needs to be even lower before I can even think about stopping my birth control. For now, I am working on getting tighter control of my daily blood sugar levels, while he has become a great assistant in managing them. Without him yelling at me to “turn off my CGM” or to “check my blood sugar,” my blood sugars would still be as bad as they were when I was in college! Being newlyweds while trying to keep a much tighter control of my diabetes has been a positive learning curve for the both of us.
Hello to all my followers! There is only a couple short days left to support this kickstarter campaign that will help parents to manage their child’s type 1 diabetes. Below is a press release about the campaign, but I want you to have the link to show your support and make a donation first. Hopefully, they can raise another $200 in the next 62 hours and reach their goal!!
Click here to support Type1D App for Diabetes Management.
I just showed my support. You should join me!
Type1D Announces New Collaborative App to Help Parents Better Manage Their Child’s Type 1 Diabetes
Startup Founded by Mother of a Child Recently Diagnosed With Type 1 Diabetes Uses Kickstarter Campaign and Feedback From Diabetes Community to Launch App; Beta Version to Be Showcased at the 2015 Children with Diabetes Friends for Life Conference
LOS ANGELES, CA–(Marketwired – Jul 7, 2015) – Type1D™, the developer of the only comprehensive Type 1 Diabetes management app that allows parents to team-manage their child’s diabetes, today announced the launch of a Kickstarter campaign (#KickType1D) to generate funds to launch the app by the end of 2015. The Type1D app, founded by the mother of a child recently diagnosed with Type 1 Diabetes, will be showcased for the first time at the 2015 Children with Diabetes Friends for Life Conference taking place on July 6-12 in Lake Buena Vista, Florida. Conference attendees will be able to view the app and sign up to be a part of the beta test.
Type1D allows each caregiver to enter relevant diabetes management data into a single, centralized account to create an instant picture of glucose levels, carbohydrates, insulin doses, activities, and other key pieces of information. Additionally, when a parent updates the child’s carb ratio provided by a healthcare professional, the school nurse, babysitter and others assisting with management will instantly have the updates for the next insulin calculation. When the child hasn’t checked their blood sugar within the required timeframe, the parents can be alerted.
“In patients with diabetes, monitoring blood sugar levels is critical,” said Tyler D. Krohn, M.D., F.A.A.P., Board Certified Pediatrician, Children’s Hospital Los Angeles. “Keeping a vigilant eye on blood sugar levels helps provide healthcare providers and caregivers with a roadmap to better manage the patient’s diabetes and avoid complications. Using mobile health to enhance diabetes management can have tremendous benefits for people living with diabetes. Every patient is unique, and their sensitivity to insulin will change over time. Having a good comprehensive set of data is essential to tailor the treatment and maintain more normal blood sugars, resulting in better outcomes.”
Type1D is the result of one parent’s struggle to find an app that could help her safeguard her child when he was out of her arms. When Type1D Co-Founder and Chief Executive Officer Julie Crawford’s son was diagnosed with Type 1 Diabetes on Halloween in 2014, she began to vigorously research existing monitoring methods for managing her son’s condition. Being a nurse herself, Crawford knew that there were multiple apps available, but none provided her with a comprehensive solution that incorporated an insulin calculator, connected with the caregivers, and had a simple-to-use interface and setup process.
“What started out as an effort to help my son has turned into a greater effort to create and share an app that can be used by others,” said Crawford. “A Type 1 Diabetes diagnosis can be overwhelming, but we hope the use of this app will help parents better transition to a ‘new normal’ and give them the power to best manage and monitor their child’s care. It can be hard for parents to keep track of their child’s condition because most children pass between various caregivers each day in their home, school, and during extracurricular activities. By having real-time visibility and centralized data, parents can better track and manage their child’s care.”
According to the American Diabetes Association, the efficacy of using smartphone-based glucose apps has improved the lives of American youth affected by Type 1 diabetes immensely. Today’s children have a much greater opportunity to live as asymptomatic as possible thanks to these innovations in technology. Apps that enable children to consistently self-monitor and relay data that is pertinent to their condition are important as they allow parents to have a long-distance picture of what the disease looks like on a day-to-day basis.
“Children have multiple caregivers that may be responsible for their care throughout the week, such as the parents, babysitter, school nurse, or grandparents,” said Crawford. “While there are numerous apps for diabetes monitoring, very few focus on Type 1 Diabetes and the needs of children. Type1D allows parents to create a team of caregivers, sharing data in a unified platform for better tracking and monitoring.”
Type1D, Inc. is the developer of the only comprehensive Type 1 Diabetes management app that allows parents to team-manage their child’s diabetes. The Type1D app is scheduled to be released for both iOS and Android platforms at the end of 2015. Type1D was co-founded in 2015 by Julie Crawford shortly after her 9-year-old son was diagnosed with Type 1 Diabetes. The company is dedicated to finding solutions to help families of children with Type 1 Diabetes better track and monitor their care. To learn more, visit www.type1d.com.
Finally a blog post slightly more personable than diabetes or blood sugar related.
We have closed on our first house.
There is a ton of work that has been done, and a ton more needs to be done. We are having a “Welcome to our New Home party” in just a short few weeks, and want to make sure the house is at least presentable (and partially moved in?) in time.
We bought a fixer-upper. We needed to install a new bathroom, a new kitchen, lots of yard work, a new patio, and of course a suitable paint job for our taste/style. It has and will continue to take a lot of work to get it maintained. However, my diabetes does not like that I’ve been working harder than before. Each. And. Every. Night!
Last night, my husband and I went to the house to do some minor patch up & prep work. Our goal was to have everything ready for my dad to come over to paint the door & window trims. I have purposely been leaving juice boxes at our house because low blood sugars have become a reoccurring thing. My blood sugar was steady when I got to the house (around 130mg/dL), and dropped quickly. Everyday I go to do some work, my blood sugar seems goes low.
A few weeks ago, we had pulled out a whole bunch of pachysandra plants had overgrown into our yard. I drank at least 4 juice boxes, had some snacks, and couldn’t tell you how long it took to get my blood sugar up above 65 mg/dL. My family was helping, and were constantly commenting that “your diabetes machine is going off again…”
I guess I have been getting lazy in recent years. I have not worked this hard in a very long time. Maybe my diabetes is trying to tell me that. The excitement of seeing projects get checked off the “To-Do” list has been a big motivator of mine. It has been a very exciting journey to this point in time. Diabetes just seems to be another part of that unusual but soon-to-be-normal routine.
We still have quite a few projects to complete before we can agree to start moving furniture into our house. You may not see many posts from me in the coming month, but note, I live with type 1 diabetes and it’s still effecting me every single hour of every single day. I need to adjust my basal rates so that I my blood sugars don’t fall so low. Hopefully in the midst of all this chaos and building our dream home, I can learn how to treat these lows a little better.
This past weekend, my friends, siblings and I went to the beach. Yay!! Just what everyone wants to do on a gorgeous 90 degree weather day.
Unfortunately, for those of us suffering with type 1 diabetes, it’s not always that easy. We need to plan ahead. We need to pack extra snacks in case of an unexpected low. We need to carry around an extra insulin pump/pump set in case it gets ripped off by a wave. We need to make sure our pumps and CGM sensors are all placed on our body properly so we don’t get funky tan lines! And remember to check blood sugars more often when being in the sun (mine tend to rise slightly higher than I would like).. My friend and I know it all too well!
Luckily, we had planned a week in advanced that we would be going to the beach. I knew what I needed to bring. She knew what she needed to bring. Those living with type 1 who have never been to the beach (or never thought about what to really bring), here is my list of Type 1 Diabetes + Beach Essentials:
- 3 Juice Boxes
- Granola Bars (I’ve found Chewy bars to be the perfect mix to raise my blood sugar, and keep it steady for several hours)
- Glucose Tablets
- Test Kit
- Dexcom Receiver
- Needles (just in case I rip off my pump)
- Extra OmniPod Insulin pump pouch (again, in case I rip off my pump)
I ended up placing my Dexcom sensor on the side of my boob, and my OmniPod Insulin Pump on the upper part of my butt. (Sorry, hubby won’t let me post ‘detailed’ pictures!) I ended up getting a great tan, had a great time, and met some pretty cool people. Here is where I hid my dexcom sensor… and one of my most favorite spots!
You may have read a recent post of mine about PumpPeelz. They create custom design patterns to fit over your blood sugar meters, Omnipod pumps and continuous glucose monitor systems. It seems that they are also jumping on the bandwagon of diabetes awareness with their new Temporary Medical Alert tattoos!
In my opinion, it is important to be accepting of having diabetes, and making others aware of my medical issues. I have a medial ID bracelet permanently tattooed to my wrist. Click here to see what my medical tattoo looks like.
Pump Peelz explains, “Because we aren’t brave enough to get a real one. There is some truth to this. But really, we thought for those fun trips to the beach or even just to a friend’s house it would be nice to have a temporary solution that is inexpensive and won’t get lost.” I think its a wonderful idea for children (and anyone who’s not old enough or brave enough to get a real tattoo) to use these temporary medical ID tattoos.
My tattoo has helped to spark up a conversation with complete strangers while at the store and with ladies beside me at the nail salon. The tattoo has helped me to voice “hey, I have type 1 diabetes!! If something is wrong, that could be the problem.” These temporary tattoos would do much of the same.
Click here to visit the Pump Peelz website and to get your Medical Alert tattoos! Right now, they have a 15% discount code as well! Simply use this code at checkout: PumpPeelzDeal.