Have you ever been in that “spring cleaning” mood? Over the weekend I was. I’ve been sick for the last few days and I thought a deep cleaning of our bedroom would make me feel better. My idea was to wash everything on our bed (comforter, sheets, pillows etc) and do major vacuuming, mopping of the floor and dusting.
In doing so, I pulled out my night table to get the dust that collected. At first, I found some test strips which I had expected. They tend to fall on the floor when I’m checking my blood sugars at 3:00am. What I found next I was not expecting…
I found proof behind our bed that a diabetic lives here.
Look at all those juice box wrappers! A whole bunch of them behind my bed.
Yup, you’d think a child slept in this bed. You’d think I never cleaned. And you’d think I’m a slob.
Well, I’m not. I’m just a type 1 diabetic trying to correct a low blood sugar in the middle of the night.
Dear Dexcom, Omnipod and my body — I hate these middle of the night lows! It’s now 3:30am and I am now wide awake.
I had my typical-middle-of-the-night-alarm set to check my blood sugar level. My meter said I was 52mg/dL. My Dexcom said I was 49mg/dL. Whoops, how did that happen? For how long have I been like this? How did i miss it? It’s for nights like these that I love my Dexcom.
Tonight, we somehow missed hearing Dex vibrate and alerting that I was low. I guess my husband and I were both in a deep sleep.
I am not complaining, just annoyed with how frequently it does happen. Thank you Dexcom for catching my low blood sugar before it could be much much worse. I am proud to say that my blood sugars are much more controlled since using Dexcom (and having my hubby sleep next to me!) Now, I’m back off to sleep.
It is very hard to constantly balance my normal life, and my life with diabetes. Most people don’t understand the stresses I deal with on a daily basis. Today, I would like to share a “Day in the Life of a Type 1 Diabetic”. These are everyday struggles that I and so many other type 1’s deal with everyday.
To start off, I need to show you the devices I use to manage my diabetes and explain how they work. My OmniPod Insulin Pump is a wireless pump attached to my body. It constantly is giving me insulin to keep my blood sugars down. This device gets changed every 3 days. Whenever I eat, I need to test my blood sugar level. I use the meter (the part I am holding) to check my level and to give myself extra insulin (aka bolus). Food, juice, carbs etc. raise my blood sugar level. Insulin in my pump bring it down. My goal is to keep my blood sugar levels between 80 – 140mg/dL. I also have the Dexcom Continuous Glucose Monitor which monitors my blood sugar levels. The sensor and transmitter are attached to my body (that’s my upper thy). The receiver is the pink part I’m holding that vibrates to alert me when I am higher or lower than my target range. For right now, I have low alerts set at 70mg/dL and my high alerts set to 170mg/dL. I wear these devices on my body 24/7, and they wirelessly communicate with the other devices you will see throughout this post.
2:06am – My husband is yelling at me to turn shut my Dexcom off. Apparently it’s been vibrating and he can’t sleep. I am extremely drowsy and definitely not awake; I reach for it and knock it off the end table. Grab my OmniPod meter and try testing instead. Blood sugar level is 228mg/dL. Ugh, that’s why Dexcom is vibrating! Go to correct with bolus, and realize I never changed my pod before going to bed last night! Now I really need to get up.
I realize I need to use the bathroom, as high blood sugars make me thirsty and use the bathroom more frequently. I do my business. Then, I quietly locate new pod, fill with insulin (as seen in this picture), rip off the old pod, prime new pod, use alcohol swab to clean new spot and stick it on my stomach. Pinch up the skin and bleep! New pod cannula is inserted. Now I can bolus for 1.15units of insulin to correct my high blood sugar. I then shut off Dexcom so my hubby doesn’t complain and go back bed.
5:10am – I awake from OmniPod meter vibrating, telling me it’s been two hours since I changed my pod. “Please check blood sugar level.” Thirsty, so I already assume I’m high. Blood sugar reads 226mg/dL, Dexcom reads 228. Bolus 1.0 unit of insulin to correct. Get up to get a glass and drink some water. Why hasn’t my blood sugar gone down from my last bolus? I don’t care, I’ll correct again. I’m tired and going back to bed! This was one of those awful “I’m not getting any kinda sleep” kinda nights!
8:10am – My husband woke up, and said it snowed. I got very excited and had to check it out… Yup, all the snow is there!
Since I got up, I decided to check my blood sugar to see if it went down. Blood sugar is 116mg/dL and Dexcom says 138mg/dL. Dexcom shows a red blood drop (in the top right hand corner) which means it needs to be calibrated.
Dexcom requires me to enter 2 blood sugars per day for calibration and to make sure it stays on track. After entering my correct blood sugar, Dex says I’m 123 mg/dL. I am perfectly ok with that! Go back to bed for an hour.
Around 10:00am, my husband asks me to get up, come outside and help him shovel a little bit. I get outta bed, grab my phone and Dexcom, throw on some boots and go out to play. I shoveled a little bit, but not too much of a workout. It was more fun to throw snowballs at the dog and watch her try to eat them!
I should’ve realized that I skipped breakfast. Around 11:00am, Dexcom alerts me to a low blood sugar… a pretty low blood sugar (I don’t remember the number, but it was vibrating without me noticing).
Without testing, I run inside, grab a juicebox and go back outside. That’ll fix it for now, but I know I need some carbs to keep my blood sugar from dropping again.
Ahhh, but look at those pretty trees! (Yea, I got made fun of for taking this selfie… but I love the snow, so I don’t really care!)
1:15pm – Just got done with snow shoveling, and had fixed that low blood sugar. I was still low… at least Dexcom was saying I was. Ate quickly without testing. I had eggs, toast and hash-brown potatoes. Now I’m going to pay the consequences for all those carbs. I’m going high as Dexcom can show you. Blood sugar reads 144mg/dL. I’m definitely going high, and quickly! Bolus 2.85 units of insulin for what I just ate.
5:50pm – For dinner, we went out. Blood sugar is 154mg/dL which is slightly high, but good enough for me. I bolus for my sandwich and fries. I also have a glass of wine, which is always a miss for managing my blood sugar levels.
Shortly after dinner, I get extremely frustrated. My hormones start ranging. My frustration makes my blood sugar level goes up.
Annoyed. Aggravated. and High. Not a good combo.
8:44pm – It’s been about an hour or so after the frustration that I realize I’m thirsty. I test my blood sugar at 269mg/dL. Yikes!!
Dexcom didn’t read it well, didn’t vibrate to alert me that I was high and was way off. It says my blood sugar is 166mg/dL. NOPE! Luckily it was time to recalibrate and I enter in my new blood sugar. It was still off, but a lot more accurate.
9:50pm – This is my bedtime reading… well my last test before I went to bed. It’s an early night as I have work earlier than normal in the morning. Bedtime reading is still high at 244mg/dL. Dexcom is reading 238 and dropping. I bolus another 1.0 unit just in case and try to get some sleep… Hopefully I don’t go low overnight!
Today was filled with a lot of lows and highs.. and not much in between. With my target range being 70 – 150mg/dL, I was only within my goal 33% of the day. Another 67% of the day was high. This is not a normal day for me… but it is proof of how the most minor things can throw off my blood sugar levels, and for hours afterwards! What I thought would be a typical day turned out to be much different than expected!
I am in the process of creating another blog post called “Day in the Life of a Type 1 Diabetics – Part 2,” which hopefully will be a much more “normal” day for me, and a regular work day. Stay tuned for what is to come.
I never thought that so quickly after getting married we would talk about having a baby. Yes, I have that “motherly instinct,” but I hadn’t thought it would run through my head almost on a daily basis. Is this my brain telling me that I am mentally ready to take the next step? Are the daily conversations with my husband about “not doing *blank* when we have a kid” or “we’ll need space for *blank* when we have a kid” normal for those who are recently married?
Right this second, we are definitely not ready to take the next step. We are in the process of buying our first house. We need to get ourselves situated in that new home. We need to make improvements to that new home. We need to make sure we can afford to live in that new home.
Financially, we agree that we need more money before we can “afford to have a kid”. There is no way we could live on just one income. Yes, I understand that you “make sacrifices for a baby,” but I don’t think we are ready to make so many sacrifices quite yet. On top of it all, I am a diabetic, and the high risk pregnancy scares the crap outta me! I just can’t imagine getting my husband all excited about having a baby, and then for something to go terribly wrong. My A1c level is right now is about 7.1.
My dad keeps saying that we are going to make a ‘special announcement’ by our one year wedding anniversary. My sister keeps saying that she can’t wait for my nephew to have a little cousin. My huband’s family loves me. I’m loved in his family. And I have to say, we work pretty damn well together too.
My whole family is leaving little hints that they want us to have a baby. They just don’t understand where I am coming from. I am scared. I don’t want to disappoint anyone, especially my husband. My A1c just isn’t perfect enough to stop my birth control pills and I don’t think I’m ready.
According to others in my situation on typeonenation.org, many OBGYN doctors and endocrinologists suggest that a type 1 diabetic’s A1c be in the 6 range before getting pregnant. During pregnancy, A1c levels should remain in the 5’s in order to avoid complications. I do understand, but I have also heard of many successful Type 1 Pregnancies without such tight control. My endocrinologist has already given me the “green light” to start trying, if we wanted to of course. Click here to read a little bit more about diabetes & pregnancy.
Do I have the motivation to lower my A1c? Will lowering my A1c help me to feel like I am ready to be a mom? Will us owning a home and having a little more space make us feel like we could have a kid? Will I ever not be scared, or will my worries just change? Will we ever feel like we are ready? I guess only time will tell… and we have plenty of time!
The beginning of 2015 is upon us. With that said, there is always changes with health insurance, deductibles needing to be met and of course, supplies needing to be shipped out! The health insurance through my job actually runs from July 1, 2014 until June 31, 2015, so I don’t need to worry about any health insurance issues starting in 2015. I am about to reach my deductible and I thought it was smooth sailing from now until the end of June.
Now that I am married and have officially changed my last name, I have the luxury of choosing to keep my own health insurance or go onto my husband’s health insurance policy. After doing research between his family policy and mine, it turns out that his insurance is a hell of a lot better that what is offered at my job, with a very minimal deductible to be met. Even after the deductible was met, his insurance will cover my diabetes supplies at 90% (verses the 50% my job was offering).
For the last month, I’ve known that I will be changing insurance in 2015. In an effort to save money, I purposely only ordered a one month supply of OmniPods, test strips and insulin. I thought I would be “OK” with the amount of dexcom sensors that I had, so I didn’t order any extra of that.
On December 30th, we received our new health insurance cards in the mail. I quickly called Insulet (maker of Omnipod) to give them my new insurance, as well as Neighborhood Diabetes (where I get my strips from) and Dexcom’s reorder department. They all said I would need to wait until the policy was in full effect on January 1st before they can send out supplies. Because the 2nd was a Friday and many offices did not open, I have to patiently wait to hear back from them in the coming week.
Unfortunately, today I ripped off my last dexcom sensor. I have been at a loss of not checking the reciever every 20 minutes or so! I feel like a teenager who lost their cell phone; waiting impatiently to call the insurance company so a new one can be ordered. I have been testing my blood sugars a lot more than usual today. I feel like my blood sugars have been all over because I can’t see the typical trend from dexcom of where they are headed.
From testing more, I am using more test strips. I seem to be running low on those too!
Luckily tomorrow is Monday and a normal “back to work” day. I will be on the phone first thing to order all my supplies, and pray that they will be delivered quickly. This girl needs to know what her blood sugar number is!
It’s been really busy lately, and I haven’t had the chance to really talk about diabetes, let alone write a post for my blog. For that my followers, I am sorry. Hopefully my older posts have kept you interested and entertained.
I just wanted to wish all my diabetic followers a wonderful Holiday season, a very Merry Christmas and a Happy New Year (in case I don’t get the opportunity to do so!)
2014 was a great year and I definitely feel like I am improving my life, both physically with my diabetes and emotionally! I married the man of my dreams, changed my last name, got to go on some awesome vacations, dealt with some high and low blood sugars, and now I can’t wait to see what the future in 2015 brings. Thank you for being a part of my special year.
What type of insulin pump do you use? Where do you typically wear it?
Are you currently using a continuous glucose monitor? Do you like it?
How do you feel when your blood sugars are low? What about high?
Do your blood sugars rise quickly when you are mad? or stressed?
How did you find out you had diabetes? How old were you?
I’ve got some ideas of posts that I want to talk about in the coming year… but your questions on here and on my youtube channel are always inspiring. I use the OmniPod insulin pump and the Dexcom G4 platinum CGM. Please comment below what you want to hear about in 2015, and I will try my best to make your wish a reality.
National Diabetes Month is upon us. I was recently asked about what I thought people without diabetes, or unfamiliar with diabetes, should be made more aware of. People are oblivious. People are ignorant. People think they know everything.
I say “people” because I have to include myself in that category. Before being diagnosed with type 1 diabetes, I had heard of diabetes, but never knew what it actually was. I didn’t know how it could affect me. I didn’t know how it could change me.
Below are a few common misconceptions about diabetes.
Type 1 Diabetes does not occur from eating to much sugar. Type 1 Diabetes occurs because the immune system attacks the insulin producing beta cells in the pancreas. This has to be the first one on my list because even my husband thinks to much sugar causes diabetes! In the movie Hazel & Gretle: Witch Hunters, Hanzel had to give himself a shot because the witch made him eat to much candy as a kid. This is the type of complete obviousness that I cannot stand! No Hanzel, you did not get diabetes from eating to much candy! I don’t care what Hollywood says.
Insulin is a cure for diabetes. Ask any diabetic, or parent of a diabetic, and they will agree that insulin is not a cure. It just keeps us alive until we can find an actual cure. Insulin allows me to manage diabetes a hell-of-a-lot easier, but also makes me have low blood sugars. Honestly, the low blood sugars are scarier than the high blood sugar levels.
You don’t look sick. I do not “look sick” because I take serious care of my diabetes. My body is constantly having a raging war against itself. I am continuously thinking about my diabetes, and my blood sugar levels. To make the non-diabetic understand: It feels like I have a little child to always take care of… one that is always asking me to do things and play with it. One who’s body is extremely tired, but has to stay up until his blood sugar reaches a normal level. One that says he’s hungry, but has to wait at least 20 minutes until his blood sugar comes down.
You’ll grow out of “it”. Ha… I wish! Diabetes and I have a long life sentence together. I wish my pancreas would just magically start producing insulin. Unfortunately, I will be insulin dependent for the rest of my life.
People with diabetes can’t eat sugar. The fact of the matter is, if a diabetic has a low blood sugar, they need sugar to bring their blood sugar back to a normal level. In reality, a type 1 diabetic can eat whatever he or she wants to, they just need to give themselves insulin accordingly. Personally, I prefer not to eat much sugar or carbs because sometimes it is hard to calculate appropriately. I also feel like giving myself more insulin makes me gain weight, but this may or may not be true.
You can cure diabetes with diet & exercise and loosing weight. I blame Halle Berry for this one. Halle Berry was diagnosed with diabetes. She stated that she had type 1 and had claimed that she was able to stop giving herself insulin after changing her diet. In turn, it “cured” her diabetes. Um, what? The fact is, she was probably misdiagnosed and had type 2 diabetes all along. There is no cure for type 1 diabetes… and I’ll say it again, diabetes and I have a long life sentence together.
Adults can’t be diagnosed with Type 1 Diabetes. It is more rare for an adult to get type 1, but it certainly can happen. I was diagnosed at age 9. One of my good friends was diagnosed at age 17. Mary Tyler Moore was also diagnosed as an adult. It can happen at any age, it just depends on when your body decides to attack itself.
You don’t need insulin if your eating sugar free cake. False. About 3 months ago, I got married. My husband and I had the top layer of our cake made sugar free, just so we knew that I could eat it on the big day. If I ate the sugar free part of the cake, would of needed insulin. Just because it’s sugar free, doesn’t mean it doesn’t have carbs. I need insulin for carbs. Fortunately for me, I was fighting a low throughout the day.
Living with diabetes is a contestant balancing act. I am always giving myself insulin to counteract what I ate, the frustration I just dealt with or the unpredictable high blood sugars that just happened to come upon me. For those who don’t have diabetes, I hope you would become more aware of what we are constantly dealing with. You comments will annoy us, and cause our blood sugars to go up; If nothing else, please be aware of that!
There has been a lot of good news out this week in the Diabetes Community! Today, I get to share that the FDA approved new Decom software with artificial pancreas algorithm. Earlier this week, I posted about experimental encapsulated cell replacement therapy called VC-01™. Both are getting us diabetics closer and closer to that “cure” we have been searching for since the invention of insulin!
SAN DIEGO–(BUSINESS WIRE)– Dexcom, Inc., (NASDAQ:DXCM), a leader in continuous glucose monitoring (CGM), announced today that the U.S. Food and Drug Administration (FDA) has approved new software for the Dexcom G4® PLATINUM CGM. The new Software 505features the same advanced algorithm as used in artificial pancreas research around the world. The software will impact the performance of the Dexcom G4 PLATINUM, already considered the most accurate CGM system on the market today. The software will be made available free of charge to adult patients using the Dexcom G4 PLATINUM.
“Patients will be able to go online and download the software, or they will receive the software preloaded onto their Dexcom receiver with new orders,” said Terrence Gregg, CEO, Dexcom. “This latest software enhancement to the Dexcom G4 Platinum will make the performance level comparable to episodic blood glucose finger sticks; this is a significant step in the evolution of CGM becoming the standard-of-care over blood glucose meters for people with diabetes.”
Dexcom, Inc., headquartered in San Diego, California, develops and markets continuous glucose monitoring systems for use by diabetes patients, as well as blood glucose monitoring systems used by healthcare providers in hospital critical care settings.
Available to Dexcom CGM users at no charge, and those who are 18 years and older, the NEW Software 505 features the same algorithm used in the Artificial Pancreas Research and is available to existing Dexcom customers for free! The Dexcom Update Tool will guide you through the download process. For those who are already using Dexcom G4 PLATINUM, of course you want to download the software! Here is where you can download.
Unfortunately, I cannot. Hopefully, it’s just for the moment. I am an Mac girl, and this is currently only available for PC! :/
If you don’t currently use Dexcom or have a Continous Glucose Monitor, watch the video below about how it has made life so much easier!
Yoga is relaxing. Yoga lets you relieve stress. Yoga will lower your blood sugar level.
A few months back, I started a graphic design job at a fitness club. I got a free gym membership, and decided to try a Yoga class. I felt great afterwards; relaxed, my mind was cleared, my shoulders had no pain, I was all stretched out, but my blood sugar was severely low.
My blood sugar level was elevated before I began (about 180 mg/dL), and I had given myself insulin. I thought I had over treated the high. I brushed it off, and tried another class a couple weeks later.
On the second time around, I could feel my blood sugar level dropping, and my dexcom CGM was going off, indicating a quick fall and a low blood sugar reading. I knew something was wrong, so I left my class. I ran to the cafe’ and asked for a glass of lots of sugar, and little bit of water (I had no money on me at this point!)
The next day, I decided to do some research. What were other type 1 diabetic’s have saying about yoga? To my surprise, there weren’t many articles relating to type 1 diabetes! Yoga is used as a wonderful tool to lower blood sugar levels in type 2 diabetics, but that wasn’t what I needed! The best article I could find, relating to type 1, was from We Are Diabetes.
In non-type 1 diabetics, stress may potentiate action caused by epinephrine, cortisol and glucagon – hormones that boost blood sugar levels and diminish insulin activity. Because type 1 diabetics can not naturally produce insulin every time something stressful arises (and let’s face it, we have just as much stress as non-type 1 diabetics, if not more) we can often experience a series of frustrating high blood sugar readings on our meters if we’re going through a stressful time. Yoga counters the effects of stress by relaxing the sympathetic nervous system, thereby helping the endocrine glands.
That was the best advice that I could find… and it makes plenty of sense. My blood sugars are usually high, probably due to some sort of stress. Yoga relieves that stress, and magically my blood sugar levels plummet!
Having type 1 diabetes is certainly a balancing act. There is always some sort of ‘explanation’ as to why your blood sugars went high, or why they went low. From now on, I need to make sure my insulin pump is turned off, and see what yoga really does to my blood sugar levels.
What has your experience been with diabetes and yoga? Has any other Type 1’s experienced severe lows after doing a yoga session?
To kick off National Diabetes Awareness month, on November 3rd, the FDA will host an unprecedented discussion between the diabetes community and senior agency leadership (both drugs and devices). The event will be live webcast from 1 – 4 pm.
How much of a big deal is this?
The event will include a panel of patients (Type 1 and Type 2), as well as representatives from ADA, JDRF, and diaTribe.
Each of us live with challenges due to our diabetes every day. Take a few moments to share your thoughts on what’s important when it comes to living with diabetes.
The survey, posted over at Diatribe, is short. The results will go directly to the wonderful people at the FDA. It will influence the conversation that will happen on November 3rd. Diatribe is asking those with diabetes (Type 1, Type 2, Pre-Diabetes, Gestational, etc.) to help gather all of our thoughts. Even if you aren’t the one suffering from diabetes, but it still affects someone close to you, please fill out this survey.
We need to show the FDA that patients care about these issues, that patients have valuable input to share, and that the treatment options we have are still not good enough. The survey is still awaiting your input.
Help the FDA understand what we want for our future. They’re listening. Let’s tell them.