Will My Children Also Have Type 1 Diabetes?

Will My Children Also Have Type 1 Diabetes? | www.IAmAType1Diabetic.comDon’t worry family; I am not pregnant, and there is no way I’d let you find out this way!

But honestly, I do have a lot of fears about being pregnant and having type 1 diabetes. My endocrinologist suggested I get my hemoglobin A1c under 6.5% before we even try. I have achieved that goal about 6 months back, with my last A1c being 6.2%, and my doctor was very pleased. But, that is not the point!

I still have fears about much life can change. Are we really ready to handle how much life will change? How will I manage my blood sugars while having an infant? Will I be able to keep my blood sugars in a “good enough” range while breastfeeding? If I have a bad blood sugar for a few days, could I possibly loose the baby altogether? If my A1c doesn’t get better/lower, will I have a huge baby? or will they have to stay in the hospital because of low blood sugars?  Will me having type 1 diabetes mean that I could easily pass it onto my future children?

I don’t mind being a diabetic. It’s just another part of my story. But, I want my children to live long, healthy lives, and not have to battle with their blood sugars. I know it’s a struggle, and I would feel horrible passing the same burden onto them! I started looking around for some answers. The American Diabetes Association had a great article on the probability of a type 1 diabetic passing along the gene to their children.

According to the American Diabetes Association, genes alone are not enough to determine whether or not you’ll pass type 1 diabetes onto your children. You only inherit a predisposition to the disease, then something in your environment triggers it (e.g. stress in my case, an illness etc.) “Identical twins have identical genes. Yet when one twin has type 1 diabetes, the other gets the disease at most only half the time.”

In most cases of type 1 diabetes, people need to inherit risk factors from both parents. I guess I am an odd man out being that neither of my parents or close relatives ever had type 1 diabetes. I was the first, and hopefully the only, type 1 diabetic in my family. My late grandfather had type 2 diabetes, but if you’ve read my blog long enough you’d know, type 1 and type 2 diabetes are MUCH different! (Type 2 diabetes has a stronger link to family history and lineage than type 1, although it too depends on environmental factors.)

What are the actual statistics of passing that risk gene on to your children? There are several types of variables: age of diagnosis, age during pregnancy, sex, and ethnicity. Men with type 1 diabetes have a higher risk of having children with diabetes (1 in 17). For women, probabilities vary based on when you got pregnant: having a child before the age of 25 gives you a higher risk of having a baby with diabetes (1 in 25). Thankfully, I am 27 years old and don’t have to worry about that statistic! But you are still at risk even if you have a baby after the age of 25 (1 in 100). Your child’s risk is doubled if you developed diabetes before age 11. If both you and your partner have type 1 diabetes, the risk is between 1 in 10 and 1 in 4. White people also have a higher chance of developing type 1 diabetes.

According to these statistics, it appears that I have about a 1 in 50 percent chance of my child actually developing type 1 diabetes. I was diagnosed before the age of 11, which unfortunately doubled my 1 in 100 risk. I feel much better knowing that those are my statistics, and I feel like I can manage that uncomfortable, uneasy feeling I had at the beginning of this post.

I have come to terms with the fact that I have type 1 diabetes. I am used to the finger pricks, insulin pump changes, CGM alarms, carb counting, high costs of supplies, the highs, the lows, and everything else that I go through on a daily basis.

I applaud all the parents out there who have had children with t1d. It terrifies me to think of my child(ren) having to live with type 1 diabetes. And if I had to learn about diabetes without being a t1d myself, phew! You are some really strong people.

Seeking Men!

We are seeking men with Type 1 Diabetes!

Bret Ringdahl, a T1D and PhD student at the University of Georgia, is researching barriers to care and insulin adherence (especially with boys and adult men). He has started a research program to better understand how T1D affects the lives of men and why men and women handle T1D differently. He has put out a have a brief survey that will hopefully lead him into other directions with the program.

We are interested in how gender and gender roles are related to your diabetes, especially in men. If you are at least 18 years old and would like to participate, please follow this link below. The survey will take approximately 20-25 minutes in total to complete.

Here is a link to the survey: https://ugeorgia.qualtrics.com/SE/?SID=SV_0fhHbp8JFe3mfHL

Please consider participating in his research study and distributing it widely on your blogs too. By completing the research survey, you will have the opportunity to register for one of two $50 gift cards. If you do not wish to participate in this research study but would like to enter into the drawing, please contact Bret directly at bret.ringdahl@uga.edu.

The person in charge of this study is Bret Ringdahl, M.A., of University of Georgia Department of Counseling and Human Development Services.  Bret is a doctoral student in counseling psychology and is being supervised in this project by Bernadette Heckman, Ph.D. For more information on them and their research programs, please email bret.ringdahl@uga.edu.

App for Diabetes | Kickstarter Campaign

Hello to all my followers! There is only a couple short days left to support this kickstarter campaign that will help parents to manage their child’s type 1 diabetes. Below is a press release about the campaign, but I want you to have the link to show your support and make a donation first. Hopefully, they can raise another $200 in the next 62 hours and reach their goal!!

 Click here to support Type1D App for Diabetes Management.

I just showed my support. You should join me!

App for Diabetes | Kickstarter Campaign | www.iamatype1diabetic.com


Type1D Announces New Collaborative App to Help Parents Better Manage Their Child’s Type 1 Diabetes

Startup Founded by Mother of a Child Recently Diagnosed With Type 1 Diabetes Uses Kickstarter Campaign and Feedback From Diabetes Community to Launch App; Beta Version to Be Showcased at the 2015 Children with Diabetes Friends for Life Conference

LOS ANGELES, CA–(Marketwired – Jul 7, 2015) – Type1D™, the developer of the only comprehensive Type 1 Diabetes management app that allows parents to team-manage their child’s diabetes, today announced the launch of a Kickstarter campaign (#KickType1D) to generate funds to launch the app by the end of 2015. The Type1D app, founded by the mother of a child recently diagnosed with Type 1 Diabetes, will be showcased for the first time at the 2015 Children with Diabetes Friends for Life Conference taking place on July 6-12 in Lake Buena Vista, Florida. Conference attendees will be able to view the app and sign up to be a part of the beta test.

Type1D allows each caregiver to enter relevant diabetes management data into a single, centralized account to create an instant picture of glucose levels, carbohydrates, insulin doses, activities, and other key pieces of information. Additionally, when a parent updates the child’s carb ratio provided by a healthcare professional, the school nurse, babysitter and others assisting with management will instantly have the updates for the next insulin calculation. When the child hasn’t checked their blood sugar within the required timeframe, the parents can be alerted.

“In patients with diabetes, monitoring blood sugar levels is critical,” said Tyler D. Krohn, M.D., F.A.A.P., Board Certified Pediatrician, Children’s Hospital Los Angeles. “Keeping a vigilant eye on blood sugar levels helps provide healthcare providers and caregivers with a roadmap to better manage the patient’s diabetes and avoid complications. Using mobile health to enhance diabetes management can have tremendous benefits for people living with diabetes. Every patient is unique, and their sensitivity to insulin will change over time. Having a good comprehensive set of data is essential to tailor the treatment and maintain more normal blood sugars, resulting in better outcomes.”

Type1D is the result of one parent’s struggle to find an app that could help her safeguard her child when he was out of her arms. When Type1D Co-Founder and Chief Executive Officer Julie Crawford’s son was diagnosed with Type 1 Diabetes on Halloween in 2014, she began to vigorously research existing monitoring methods for managing her son’s condition. Being a nurse herself, Crawford knew that there were multiple apps available, but none provided her with a comprehensive solution that incorporated an insulin calculator, connected with the caregivers, and had a simple-to-use interface and setup process.

“What started out as an effort to help my son has turned into a greater effort to create and share an app that can be used by others,” said Crawford. “A Type 1 Diabetes diagnosis can be overwhelming, but we hope the use of this app will help parents better transition to a ‘new normal’ and give them the power to best manage and monitor their child’s care. It can be hard for parents to keep track of their child’s condition because most children pass between various caregivers each day in their home, school, and during extracurricular activities. By having real-time visibility and centralized data, parents can better track and manage their child’s care.”

According to the American Diabetes Association, the efficacy of using smartphone-based glucose apps has improved the lives of American youth affected by Type 1 diabetes immensely. Today’s children have a much greater opportunity to live as asymptomatic as possible thanks to these innovations in technology. Apps that enable children to consistently self-monitor and relay data that is pertinent to their condition are important as they allow parents to have a long-distance picture of what the disease looks like on a day-to-day basis.

“Children have multiple caregivers that may be responsible for their care throughout the week, such as the parents, babysitter, school nurse, or grandparents,” said Crawford. “While there are numerous apps for diabetes monitoring, very few focus on Type 1 Diabetes and the needs of children. Type1D allows parents to create a team of caregivers, sharing data in a unified platform for better tracking and monitoring.”

About Type1D

Type1D, Inc. is the developer of the only comprehensive Type 1 Diabetes management app that allows parents to team-manage their child’s diabetes. The Type1D app is scheduled to be released for both iOS and Android platforms at the end of 2015. Type1D was co-founded in 2015 by Julie Crawford shortly after her 9-year-old son was diagnosed with Type 1 Diabetes. The company is dedicated to finding solutions to help families of children with Type 1 Diabetes better track and monitor their care. To learn more, visit www.type1d.com.

Temporary Medical Alert Tattoos

You may have read a recent post of mine about PumpPeelz. They create custom design patterns to fit over your blood sugar meters, Omnipod pumps and continuous glucose monitor systems. It seems that they are also jumping on the bandwagon of diabetes awareness with their new Temporary Medical Alert tattoos!

In my opinion, it is important to be accepting of having diabetes, and making others aware of my medical issues. I have a medial ID bracelet permanently tattooed to my wrist. Click here to see what my medical tattoo looks like.

Pump Peelz explains, “Because we aren’t brave enough to get a real one. There is some truth to this. But really, we thought for those fun trips to the beach or even just to a friend’s house it would be nice to have a temporary solution that is inexpensive and won’t get lost.” I think its a wonderful idea for children (and anyone who’s not old enough or brave enough to get a real tattoo) to use these temporary medical ID tattoos.

My tattoo has helped to spark up a conversation with complete strangers while at the store and with ladies beside me at the nail salon. The tattoo has helped me to voice “hey, I have type 1 diabetes!!  If something is wrong, that could be the problem.” These temporary tattoos would do much of the same.

Temporary Medical Alert Tattoos by PumpPeelz | www.iamatype1diabetic.com
Click here
to visit the Pump Peelz website and to get your Medical Alert tattoos! Right now, they have a 15% discount code as well! Simply use this code at checkout: PumpPeelzDeal.

4 Memes

4 Memes | Calla Michalski | Blog Owner of www.IAmAType1Diabetic.comThe Four meme is making the rounds and I thought it would be something fun to post.

I don’t really post non-diabetic things here, so sorry if this is slightly out of the ordinary. I’m just trying to have a little bit of fun, and let you learn more about me! (And if you need to complain, see the comments section below).


So here it goes:

1. Four names people call me other than my real name.

1. In high school, my best friend called me “Rapunzel” because I had really long hair, and never “let it down.” Haha, yup it was always up in a ponytail.
2. Super-CALLA-fragalistic-expe-alladocious. Just cuz it’s funny.
3. “Calla Lily”. You have no idea how much this would annoy me when I was younger. Yes, I’m named after a flower.
4. Mrs. Lugnut – At our wedding, my sister’s maid of honor speech was the best I’ve heard! My hubby and I met because he “forgot” to put a lug-nut on my car. In her speech, she said, “You may now be Mr. and Mrs. Michalski, but in my eyes, you’ll forever be known as Mr. and Mrs. Lugnut!”

2. Four jobs I’ve had.
1. Ted’s Hot Dogs — first job.
2. Computer Lab Assistant — while in my early years of college. Good job, but working til 2am sucked!
3. The entire communications and marketing department at a small real estate firm.
4. Graphic Designer at a fitness club (current job & loving it!)

3. Four places I’ve lived
1. Mahopac, NY
2. New Rochelle, NY
3. Clarence, NY (outside of Buffalo)
4. Niagara Falls, NY
(AND hopefully soon, I can add Putnam Valley, NY to the list).

4. Four places I’ve visited
1. Zurich, Switzerland
2. Barcelona, Spain
3. Venice, Italy
4. Aruba

5. Four things I prefer not to eat
1. Tomato Sauce
2. Pizza (I love it, but boy does it mess up my blood sugars!)
3. Oranges — to hard to peel
4. Whole grain breads, and carbs, and sugar. Oh my goodness — I hate diabetes!

6. Four of my favorite foods
1. Cheese. All and any kind. I’m a total “cheese-head”
2. Philly Cheese Steak
3. Hot dogs with mac & cheese
4. Stuffed Shells (and apparently my mother-in-law loves mine too — she recently asked how I made them! lol)

7. Four things I’m looking forward to this year
1. Closing on our first house
2. Renovating & painting our house
3. Visiting Orlando & enjoying some much needed sun
4. Our one year wedding anniversary. I can’t wait to actually taste our wedding cake! (Yes, I ate some on our wedding day, but my blood sugar was low so I pretty much shoved it down my throat. I can’t wait to actually enjoy it.)

8. Four things I’m always saying
1. “Whatever” / “Whatever you say” (mostly to my husband)
2. “You want this by when?” (mostly to myself, at work, whenever marketing plans are submitted way to late)
3. “Can you feed the dog?” (at home, to my husband while I’m cooking dinner)
4. “I wish I could do yoga tonight” (to my co-workers at 4:30pm when my blood sugars are lower than they should be)

So there you go! Hopefully you learned some interesting stuff about yours truly.
Respond below with some of your 4 memes. I’d love to learn more about you too (diabetes & non-diabetes related)!

Egg-Crack Challenge

Remember the “Ice Bucket Challenge”? A new awareness challenge is trending! The diabetes “Egg-Crack Challenge” was started by a young man who recently passed away due to complications of type 1 diabetes.  Students from Villanova University took it to the next level to promote awareness and doing the Diabetes Egg-Crack Challenge.

Watch the video here!

Crack, donate, nominate. Let’s see your video. Maybe you’ll see me doing the diabetes “Egg-Crack Challenge” in a video soon…

If you plan to join in the challenge, please remember to donate to JDRF! Donations can be made online here. Also, don’t forget to share your link in the comments below!!! I’d love to see it.

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Whoops!

Sometimes we just can’t help it! We go around a corner to quickly and rip a pod off our arm. We pull down our pants a little to quick to use the bathroom, and there goes our dexcom sensor.

Dexcom & Omnipod fails! | www.iamatype1diabetic.com

Yup, this has been a bad week for me with all my diabetes gadgets. At least I got a good run outta this dexcom sensor. It hasn’t been wasted, and I got my money’s worth by using some skintac. Just needed to share. #diabeticprobs

Attractions in 2014

What have we discovered in 2014 about other people living with type 1 diabetes? What else can we learn about type 1 diabetes? How have things they have gone through effected us? That is my question to you, my reader.

Attractions in 2014 | What have we learned about type 1 diabetes in 2014? | www.iamatype1diabetic.com

These are the posts that got the most views in 2014.

  1. Can Diabetics donate blood?    
  2. Wedding Day with Type 1 Diabetes    
  3. Site Change    
  4. Can You Donate Blood with Type 1 Diabetes?    
  5. 3 Things You Should Never Say to a Person with Diabetes    

Some of the most popular posts were written before 2014. Writing has staying power!

Posting Patterns

In 2014, there were 92 new posts, growing the total archive of this blog to 188 posts.

BEST DAY

Happy New Year from Calla at “I am a Type 1 Diabetic.” Best of luck in 2015!

Click here to see the complete report.

“Month One”

Calla Michalski:

I’ve never had a babysitter who understood my life with type 1 diabetes. I never really had my parents understand why it was so hard to manage my diabetes. To this day, they see my dexcom and question why my numbers fluctuate that much!
I love this post below from “My Lazy Pancreas.” Have a read for yourself! (and of course, let me know what you think!)

Originally posted on My lazy pancreas:

Tonight I was babysitting two kids, one of whom has type 1.

I tested him post dinner, then before bed, then an hour post bed because he’d been running around like crazy and I had a gut feeling he would shoot down.

I was right. 15 point something down to 6 in an hour,

This boy is still very newly diagnosed and on injections (syringes), so I tried to get food into him to keep him stable overnight…
Anyone who is a parent of a child with type 1 or who has worked on type 1 camps before knows that this is a lot easier said than done. Kids get distressed, they don’t seem to know who you are or why they’re being asked to drink orange juice and crackers in the middle of the night – and who can blame them? I wouldn’t want a nanny forcing juice down…

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